Introduction

My name is Raena Zapp. I am a 52-year-old woman living in South Surrey, BC. I have been a Registered Psychiatric Nurse for over 30 years, with a diverse clinical background in mental health and nursing leadership. Currently, I work full-time in healthcare and serve as a Board Member for Lipedema Canada. I have been married to my husband, Russell, for 21 years, and we have a 19-year-old son and two beloved dogs.

Background & Diagnosis - When did you first notice something wasn’t right?

I first noticed changes in my body around age ten, just before puberty. While the other girls in my school and ballet class remained slim, I began developing curves from the waist down at an accelerated rate. This marked the onset of lipedema—the progression of diseased adipose tissue.

For decades, I struggled with my "weight," which reached over 315 lbs by my 40s. During every period of hormonal shift—puberty, childbirth, and perimenopause—my body changed significantly despite rigorous diet and exercise. In 2007, I was treated for an eating disorder and successfully released 100 lbs; however, my lower body remained virtually unchanged. My mental health suffered as I felt I was doing everything "right" without seeing the results I expected.

What was your diagnosis experience like?

In 2024, a friend in the food addiction field asked if I had heard of lipedema. I hadn’t, but a quick search left me in shock; the photos I saw looked exactly like my own legs. I felt like I was looking at a mirror. I immediately began researching through the Lipedema Canada website and joined social media support groups.

I eventually found a local vascular surgeon, Dr. Khambati. I approached my family doctor with information from Lipedema Canada, requesting a referral and beginning conservative measures like prescription compression leggings. After ruling out other possible causes like diabetes, obesity, venous insufficiency and lymphedema, Dr. Khambati confirmed the diagnosis using a thorough medical history, physical exam and an in-office ultrasound.

He was honest about the landscape in Canada: there were no trained surgical specialists for this condition locally, and surgical intervention would not be funded by MSP. He supported my conservative management plan, including an anti-inflammatory diet, prescription made to measure compression, and Manual Lymphatic Drainage (MLD). Leaving his office, I sat in my car and cried—tears of both relief for finally having an answer and grief for the long road ahead.

Daily Life & Challenges

What does a typical day look like managing lipedema?

My day begins with a "love-hate" ritual: donning my compression garments using gloves and a slider. While they are a struggle to put on and can be uncomfortably hot, I feel significantly better when I wear them.

My diet is regimented and focused on whole foods, avoiding inflammatory triggers like sugar and flour. Despite working full-time, I prioritize at least 10 minutes of physical activity daily. I also schedule weekly MLD massages with a certified professional, self MLD at home and physiotherapy to maintain my mobility and mental well-being.

How does lipedema affect your daily life?

Mobility requires constant planning. Sitting or standing for long periods is painful, so I elevate my legs whenever possible. I have to plan and allow extra time for dressing and trips to the washroom. Most importantly, I’ve learned to pace myself and speak up when I need rest. Learning to say "no" has been a challenge, but I realize I cannot support others if my own tank is empty.

In March 2026, I traveled to Germany for the first of several self-funded surgeries. Surgeons removed 11.5L of diseased tissue from the front of my legs. While the recovery has been slow and I faced some post-operative complications, the support from my medical team was exceptional. This surgery was not about aesthetics; it was about preserving my quality of life and regaining hope for my future mobility.

Emotional & Social Impact

Living with lipedema has taken a heavy emotional toll. For years, I faced fat bias and stigmatization, believing that my inability to lose weight was a personal failure. The judgment from society, the media, and even healthcare professionals is exhausting. I have dealt with depression and anxiety as a result, but I am grateful to say that I am currently doing well.

Coping & Resilience

What helps you cope?

I have a solid support system and find balance by helping others while practicing self-care. Gratitude, spirituality, and taking life "one day at a time" have given me a new perspective.

What advice would you give to someone newly diagnosed?

Stick to verified, research-based platforms like Lipedema Canada. Be skeptical of "quick fixes" or "cures" advertised on social media. Connect with others who share your experience—isolation is the enemy.

What gives you hope moving forward?

My work with Lipedema Canada is incredibly rewarding. Knowing that there are a group of dedicated people working together in Canada plus advancements in international research and standards gives me hope that Canada will soon recognize this condition and provide equitable healthcare. I am particularly excited about our first Canadian Lipedema Conference in Winnipeg LipCanCon this September—it is a massive step forward for our community!

What is Lipedema?

Lipedema is a chronic and painful fat distribution disorder that affects an estimated 1 in 9 women (assigned female at birth). Lipedema is characterized by a symmetrical and disproportionate accumulation of fatty tissue in the legs, hips, and arms, often accompanied by pain, heightened sensitivity to touch, mobility challenges, difficulty losing weight, and reduced quality of life. Although it presents with distinct symptoms, lipedema is frequently misunderstood or misdiagnosed. While there is no cure, various treatments can help alleviate symptoms and improve quality of life.(Lipedema Canada, 2026)

Lipedema Awareness Day

June 11 is Lipedema Awareness day.  Lipedema Canada currently has 15 sites confirmed across BC that will be lit up purple in recognition of this day. Sites include the BC legislature, Sails of Light, Vancouver Convention Centre, Olympic Cauldron.

Written by: Raena Zapp